When a child is diagnosed with cancer, it feels like a lot of things are coming at you at once. Downloading information to read when you’re ready can help when you’re overwhelmed.
Watching the stories of people who have walked in your shoes may help you feel less alone as you make your way through your child’s diagnosis, treatment, and post-treatment care. Here are some videos from families like yours.
When brain tumors strike twice
The real cost of hearing aids
Strong-willed 5-year-olds and hearing aids
A child’s cancer can take a toll on the whole family. The groups listed below can provide support, advice, and education to help your family along the treatment journey.
Momcology is a 501(c)(3) nonprofit organization committed to extending the benefits of community by providing reciprocal (mutual giving and receiving) peer support models for childhood cancer families. Their mission: to empower and heal pediatric cancer families through the valuable resource of peer support.
The Coalition Against Childhood Cancer (CAC2) is a collaborative network of organizations and individuals supporting and serving the childhood cancer community. Their mission is to effectively advance a variety of childhood cancer causes by unifying the childhood cancer community through broad-based coordinated action and collaboration that leverages the strengths and expertise of its individual members and minimizes duplication of effort.
The Hepatoblastoma Resource Network is an organization whose mission is to provide a credible, consolidated, and current resource for the hepatoblastoma community by providing families, clinicians, and researchers with the latest medical efforts while empowering patient families through registries, trials, and research.
Named a Top 10 Medical Research Organization by Charity Navigator in 2018, Alex’s Lemonade Stand is a 501(c)(3) nonprofit organization whose mission is to change the lives of children with cancer through finding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer.
PEDMARK is a prescription medicine used to decrease the risk of hearing loss in children 1 month of age and older who are receiving cisplatin for solid tumors (cancer) that have not spread to other parts of the body.
It is not known if PEDMARK is safe and effective when given after cisplatin infusions longer than 6 hours.
It is not known if PEDMARK is safe and effective in children less than 1 month of age. PEDMARK is not recommended in children younger than 1 month of age.